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Wednesday, April 16, 2014

Follow up appointment

Chris and Owen went to O's appt together. I wanted to go of course but bringing Ara I wouldn't be a lot of help. I has also been preferring Chris at times like this so I sat this one out. 

O had a hard time with more medical stuff. He's just over it, wants to be left alone and was freaking out even before the chest X-ray. Two nice ladies let him go before them, turns out if you have a screaming child and you mention 3rd heart surgery that gets you to the front of the line! 

Our usual cardiologist took a week off (usually an awesome workaholic) and they met another great doc. She said his X-ray still shows congestion but it's normal for post Fontan circulations. It can take a while to clear. She did decrease his lasix and discontinue a blood pressure med, so awesome. His weight is only* down 2 pounds, he looks like a skinny chicken legged man. We estimate a pound at least of fluid loss and the rest actual loss. 

Didn't have to do labs thank goodness!!! The EKG and vitals pushed his threshold too. 

Owen did better with he face to face with the doc, she told him her 3 year old girl likes monster trucks. Owen asked her where they were and she said at home. He asked her where she lived so they could go play with them:). 

Ara and I got out and enjoyed the sunshine. Being a mom of two I feel torn a lot of the time. Working on having peace with where I'm at, as it's usually with one of the kids. Ya just want to give 100% to each of them all of the time. Some people make this look easy breezy but it's not. 
We went on a little family stroll last night. Md recommended increased walking as tolerated to help his circulation and fluid. Our neighbors goat peeped over to check us out.



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