Team Britton
Nana and Papa Britton bought Owen his first motorcycle gear. This was a picture from Sunday night.Owen's big day is tomorrow. He had a busy night from what we heard last night. He somehow lost his IV access which gives him his meds to keep him sedated. He then was very upset when they were trying to keep his airway. He desated a lot from what we were told. They had to take what they could get so poor guy now has another IV in his scalp that should come out soon. They were able to place a Picc line finally this morning so we should not have any further I access problems. I guess when reading back through last night's post I forgot to say what day he is having surgery. It is tomorrow (Friday) first thing in the morning, but as we all know things can change and he can be pushed out. He has started to have more desaturation's so they don't want to push him out too long. He is with one of his favorite nurse's today so that is good. They say that the procedure will take a good part of the day. Chelsea and I will be leaving at that time. We will probably go on a walk through the academy of science which is right by here and take a look at Golden Gate park. We don't know what to expect tomorrow. We know it is going to be a long day and more sleepless nights to come. It is surprising how you can still function without much sleep. You just adapt to your situation. Thank you to everyone for the comments, calls, emails, and texts. Your words of encouragement are uplifting and it gives us something to look forward to. The sun has been out today- that's a change. It is still cold but the sun was a nice change. Mark Twain once said "The coldest winter I ever spent was a summer in San Francisco" That is what one of our RN's told us. Owen is strong!
-Chris
7 comments:
I'll be thinking good thoughts for you guys all day tomorrow and praying for strength and an uneventful procedure. Take care!
LOVE the picture of "Team Britton". You will have to blow that one up and frame it...awesome! Chris, I will be sending every little bit of good thought and positive energy I have your way tomorrow. I am just in absolute awe of your family's strength! Owen is a strong little dude from what you describe and I can't wait until you guys can take that little cutie home where he belongs! ~Stacey M.
Good luck, let us know as soon as all is done. Stay strong.
Sayna
We are all thinking about you guys and praying for little Owen. Stay strong and try to take care of yourselves too. Owen has already shown how strong he is. We will be thinking about you tomorrow. Just remember we all love you and are always here. Susie, Kenny, Katie and Cameron.
Good Morning,
Responding to something Chris said in a recent blog post: yes, people wonder how we do it when we have a sick child. I think we do it because we have no other choice. We take one day at a time (say for example Kate's radiation treatments) and before we know it, the worst is over.
Then a new "maintenance" chapter begins. This chapter will be filled with many doctors' appointments. Chelsea, did I tell you I keep a 3-ring binder that has all of the consent forms, discharge instructions, MD business cards, copies of reports, IEP documentation, etc? Has been very helpful just to have it all in one place. I would probably also make a list of current meds so you can update it and photocopy it when a new doc wants it. You could keep Owen's growth chart and immunization record in there too.
Praying for all of you.
Joan
Jeff and I are thinking of "Team Britton" and sending all our good thoughts to everyone on Owen's team in SF. We are amazed at your strength and your openness to share this journey with all of us. Your blog makes us laugh and cry and teaches us to enjoy all the precious, little moments that life offers. Hoping for the best this morning. Our thoughts go out to all of you.
Praying and keeping you all in my thoughts. Its amazing how strong you can be when you have to. There is a big huge powerful postive, loving thought process in the universe today. We are all routing for you! Yeah! GO Team Britton, Go Owen you can do this!!
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