Another day down. Hopefully there are not too many for that we have to count down. Owen is doing better with each meal and has not been having any projectile vomit like he has had in the past couple of days which is good. We have began to fortify his breast milk with more calories to get him to grow. It's not that he is very far behind in his growth, but that he has higher needs due to surgery and also his heart anatomy. As he grows he will grow into the shunt that they gave him. This will help slow his respiratory rate down a little bit as well and he won't have as much fluid on his lungs as he grows. He has been doing great--better than they want actually with his o2 saturation's but as he grows this will come down as well.
We asked the surgical NP about elevation difference. We live at about 1200 feet right now but they don't think that will bother him too much. (because of less oxygen at higher elevations) So no trips to Tahoe or anything like that for Owen at this time. Owen has still been gaining weight almost 9 lbs today. Crazy that he didn't lose any with surgery and everything else that was going on. They said that it is hard to keep him here because they are not doing very much for him at this time. They are only really watching his respiratory rate and don't want to send him home too early and we end up back in the hospital. They will do another chest x-ray in the morning an re-eval after that.
Chelsea and I went out to dinner last night had some good Mediterranean food. We haven't been leaving the hospital until between 8-9, so it was a light and perfect late night meal for us to have. The fog and wind are back which is nice because the hospital is no longer 85 degrees in the rooms. We have met a lot of great people during our time here and wish for the best for them. There are some other cardiac kids here that are very sick and a couple we know had a very hard day the other day with their little one. We try are best to give them all the support that we can from our experience.
These kids are amazing and bounce back a lot better than adults. I pray and hope for the best for all the other kids and their families here. Our time here is soon to be over (for now) but I wanted to say thank you all for the continued support of Owen and his quest. By the way, we also made a compliant to Ronald's people about the bed and they said they will be getting a new box spring and frame. The 6th time was 1 too many.
-Chris
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