Working on a plan

Owen is doing better after an exhausting 2 weeks. He is still showing signs of medical trauma so we are seeing child life in Roseville to work through it and prepare for what's to come. I guess it is really common in kids his age and per the child life therapist they adapt. Something must have set something off in Owen, having worry and new fears about his body. Hopefully we can see some improvement before we go back to SF.

UCSF rounded on Owen yesterday and contacted our local cardiologist who was in agreement with their findings, that the right ventricle wasn't going to do much, and that Owen is in need of the Fontan surgery. This was expected news for us, after the cath that was what was shared as the likely plan. 

There is no urgercy on the medical end, however on our end we are feeling some urgency. There is a lot to prep and plan for, and our babe is developing quickly. She rolls all over now, and will be sitting soon (if we ever set her down, ha!) these challenges we will face regardless of when we move to SF for a bit, but I feel it would be easier on all of us the younger Ara is. 

So we have reviewed our schedules, made lists of what needs to be done, and we wait for Ucsf to call us. 

Owen had his second Heart surgery 3 springs ago. It seems like forever ago! 

Owen still loves monster trucks:).