Top Topics

Saturday, December 4, 2010

A Plan?

Okay I am typing with a post-feed baby who is still in the vomit zone (versus the vomit free zone, namely 30 minutes after the end of a feed). He is allowing me to type with both hands at this current moment, so we will see how long that lasts! Type faster, type faster!

Cardiology appointment on 12/2... Sats in the low 80's, weight up to 12# 13 ounces, echo/EKG looking okee dokee... Chris can explain everything so much better, but here is the plan?

1. Lasix only twice daily for a bit! Yay! No adult pees in the middle of the day!
2. Follow in a few weeks as well as January to check sats.
3. Cardiac cath
4. Fix anomalous veins as able
5. Glenn Procedure.

3-5 Will occur in Feb/March depending on how Dec/Jan sats and check ups go...You know, this kid is a wait and see type of dude!!
I will post a little about Glenn procedure as able!

Guess what? I have 2 mommas for feeding therapy and friendship! Their little boys have issues feeding and other chronic problems (which is not good) but soo amazing that we are connected! (which is good!)

One of them being a momma from Ron's house ( have I blogged this!??) and the other one is Paxton's momma, who also has Ebstein's. Remember previous blogs about him?? Testing your comprehension now, ha!!

So, Still enjoying every last second at home and yes dreading going back...Admittedly will be harder than the first time, none of us knew any different. Now we have routines, bonds, smiles, and Owen doesn't sleep for 90% of the day!!

Wow he is just enthralled staring at the screen..I will try to look up glenn procedure and then post something about that if my techie (lack of techie) skills allow!

No comments: