Morning all! Owen just woke up for his am meal, had a good breastfeeding session and is back asleep getting his feed in bed. I just gave him his aspirin, lasix, spirulactone, and zantac, and am getting ready to pump. I just couldn't stop thinking about another little boy named Paxton.
Dave found his blog by searching on blogger. He was born earlier this year, and also has Ebsteins anomaly, and another syndrome which affects his eating habits as well. We have been following their blog and Paxton's status this whole year. Paxton also had the BT shunt placed like Owen, and also gets his momma's milk through a feeding tube. His more complex feeding issues require further therapy. (As Owen's are related to his fast breathing aka tachypnea).
Today Paxton is having his shunt removed and is getting the Glenn procedure done. Please keep him in your thoughts, he is about 8 months old now. Also send his parents Susie and Scott, and the care team your strength today. Susie has given me a lot of inspiration, as she is still pumping, doing his feeds, working, and running her household as her husband is gone frequently for work/school (I can't figure that one out...) Susie is a veterinarian and also a dog lover like us!
So on this day, please be grateful for your health, eat well, be glad for your functioning body, and enjoy the ease you have of your breath--it doesn't come easy for these little warriors. They are strong but it is not an easy road.
GO TEAM PAXTON!!
2 comments:
Go Team Paxton!!! All the support from Ireland & Mexico!!! Xo xo L.G.B
Love ya Britton´s!!! Besos =*
Thanks Lichi! Always good to hear from you. I have been checking their blog but no updates yet... Right after surgery is no stressful and touch and go. MIss you,
CHels
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