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Thursday, August 18, 2011
Gastrostomy Tube Placement Tomorrow
I am procrastinating packing my bag for the hospital... Owen is scheduled for his gtube surgery at 745 tomorrow, with an arrival time of 6am at the hospital. This means a wake up of.... 430...YUCK! Should be illegal... Reminds me of when I used to work the first shift at Mercy. His ECHO, EKG, and labs were all great this week. Pretty cool for a breast pumping/random food mixing mom and dietitian to hear! Owen has had a hard week with Monday starting out with all the appointments and being awake for 3 hours that night. He has been clingy, whiny, and tired. He usually is none of those things... Poor guy...We have later found that he is getting his last 2 molars at the same time. He now has 13 or 14 teeth. It is getting ridiculous. The good thing is that he actually has been sleeping better the last 2 nights, with a stretch of 7 hours both nights. He hasn't done that in a month. For all of you who want (why!!!??) to picture what our nights are like here goes: Owen goes down getting a feed around 8. Wakes up when feed is almost done (around 845 with a gag or cough). Goes back to sleep for an hour. Wakes up. Goes back to sleep. I go to bed around 10 or 1030. The minute my head hits the pillow ( or a few minutes therafter) Owen literally senses it and wakes again. Then he sleeps for another hour or two and wake when Chris's head is in close proximity to his pillow. If it were just a little whine or talk-babble that would be one thing, but this kid wakes with A VENGEANCE! Screaming like no other!! Anyway, I long for when these exhausting nights are a thing of the past, but so far they are still present... Except the last 2 nights, and 2 weeks in July, most of our nights have been like this...Up every 1-2-3 hours... Talk about a sleeping disorder! Okay, I better give into my to-do's... Owen's bag is packed, the laptop and DVD's are packed, and I am the only slacker...Wish us luck tomorrow, and a good night's rest. Thank you all who have contacted us this week/tonight about tomorrow, it means a lot to us. I have seen the procedure done outpatient, in adults, but Owen is going to be intubated, and will stay for at least 2-3days. More soon!
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