Tuesday, April 8, 2014

Onwards!

Today was a better day. I was as usual a bit overwhelmed but we are making it! Marsh helped with the kids, Owen was having a ball with his new monster trucks and key car. 

His output out of his chest tube was less and the chest X-ray looked better! His surgeon paid us a visit and mentioned possible home Friday again...!!!!!!!

Still need to remove chest tube
Then o2
Then change heparin to plavix
Then wean diruetics and check electrolytes 
Also increase activity. He is weak and walks wobbly and hunched. He had a little fall tonight while walking with dad but dad made the decision to let him fall versus grab under his armpits which you can't do for 6 weeks. He's short and it was a little bail, no worries! 

We went to the hot hot playroom today. It was quite an ordeal to get an IV, chest tube drainage box and oxygen to the playroom and a kid! Plus I was wearing sleeping Ara. Marsh came with and helped thank goodness. I about keeled over in the heat, but Owen had a blast. It was quite busy with 8 kids and one child life specialist. Owen wanted to get there so badly and the elevator was taking forever! He was being so good poor guy. In the middle of playing with the kitchen foods Owen announced "I have to pee!". This playroom for some reason is not equipped to handle these sorts of things. The awesome ladies scrambled around and found a basin, grabbed a blanket, and dropped his trousers faster than you could say "have to pee!" Three times fast. One felt he need to hold the blanket like a curtain. I just got out of the way and directed traffic as I was wearing Arabelle. 

After the near splash episode another little girl decided to attempt to squeeze through the 5 inch gap between Owen and his wagon. (That wheeled him down to the playroom). I about pushed that little 4 year old girl toward next Monday when she approached his IV lines... Not the IV line! Please no! Save the IV! I would do pretty much anything to keep that IV as long as we need it!!! It is always quite hard to get one on Owen, and to have to do that again or have lab sticks daily would be quite miserable thank you very much. I apologized for potentially abusing the little girl, and she went on playing far from the protective mom in the room... 

All in all it up being a great day. I heard Owen's belly laugh I've been craving so badly. I worked for it hard and I got to hear it. He is starting to look more like himself! Oh boy! He's doing great a week out! Fantasnic as he says!

2 comments:

  1. I'm so glad it was such a good day! I love that picture of Owen on this post.
    Thinking of you - oh, and could you please give Marsh my love?!
    I am happy she is able to be there to help out.
    Love, Heidi

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  2. Love this, I'm so glad you got to hear that laugh!! Why the heat? Is there a medical reason to keep the rooms warm? Or just failing AC?

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