Frustrating day. So they had their big meeting today and have not decided anything. One of the cardiologists did come chat with us which was nice, we were feeling a little in the dark. This is day 26 of Owen's life and 2 weeks we have now spent in SF. We were told they talked about Owen the most during the cath meeting but no decision yet. Owen is very complicated because of his unusual anatomy, and they are not sure how to approach him without causing other problems. There is too much for me to go into about what is going on with why we are still waiting. They are keeping him intubated and he is doing well with it. They placed a NG (feeding tube) so he can eat. He's getting the good stuff from Chels so we are all happy about that. His growth was right on track the other day Chelsea calculated that. We will hopefully have a plan soon. Chelsea went to the scrapbooking hour again since Tuesday rolled around again. We are thinking of taking a half day off tomorrow or something...We feel kind of helpless, we are used to changing him, taking his temp, feeding, etc. But now we just kiss and touch and let him know we are here. I was going to wait and publish this at the usual time but no news is no news. Sorry it's short but that's all I can do today.
-Chris
Owen is growing and doing so well due to his amazingly strong, supportive, and nurturing parents. Great job Mom and Dad.
ReplyDeleteHang in there guys, hopefully a decision will be made soon. The good news is that he is growing and obviously the other organs are thriving. Keep in mind it is a teaching hospital so every process takes even slower due to the battle of the great minds. You are doing great, stay calm, and excellent idea: take a break.
ReplyDeleteSayna
We're thinking of you guys and loving on you from a distance. Much love from Andy, Candyce and Ellen
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