Chels took this pic- the heart in the cement by the hospital.3 weeks today in SF. Another day here Chelsea was able to scrap book in a class today for the 3rd time. They offer it to all parents and help you with it if you need help. We are getting to know other parents here and at Ron's. It is nice to meet them and we share the same stories with each other. We have a tentative plan with another try to extube (pull out the breathing tube) in the next few days. Owen is still going strong but manages to scare us at least 1 time a day. He had another episode of of a slow HR today but not anywhere as near as bad as yesterday. This is a slow process of weaning everything and they want to take their time with him. They say he is still not out of the woods yet which I believe more and more. We are are hanging in there but everyday is tough. Owen has been on a lot of lasix so he is losing a lot of his "puff factor," as put by the surgeon's nurse practicioner. He has a good amount of urine ouput which has made him more in the negative. This means he has more fluid volume going out then coming in. He has been weaned off the epi drip again which is a good thing. We are back on the the right track again. The team here contiues to be great with us and Owen. They are letting him just rest for the time being. They said that they might feed him tomorrow via feeding tube again to start stimulating his gut. He has been on TPN and lipids the past 2 days. Chelsea got to see his incision today when his dressing was changed. It's about 4 inches long, and looks normal. Today has flown by for some reason, and we are getting in a routine. The sun was out for quite a bit today, at least every time I looked out the window. Hope this update finds you all well and that you are also doing good. We write about us and don't always make a point to respond back to comments, but they mean the world to us. Until tomorrow...
-Chris and Chelsea
Glad to hear you had a little bit of sun today. Thank you for the updates, and we do only want to hear about your day. We all know that you need to keep your energy for Mr O, rather than responding to each of us. Hope he keeps it all positive tomorrow.
ReplyDeleteSayna
Glad you got to see the sun today. The universe is trying to cheer you up. Don't worry about us. You have enough to worry about.
ReplyDeleteDon't worry about us, nothing is worth putting any energy into,except that little guy. He is strong and in the best place with the most capable hands taking care of him. Thank you for sharing your emotional journey with us. I think of the 3 of you constantly and I'm sending you all (((hugs))). Chris, how many more gray hairs have you grown??
ReplyDeleteCan I just say that you guys are amazing over there? I am a good friend of Wynter's and have inquired enough about your situation to have been directed to your blog site....sending love and hugs and positive thoughts your way....thank you for sharing your journey.
ReplyDeleteChris and chelsea,
ReplyDeleteThank you for sharing this nost intimate journey with us, It is so scary and such a tough road, I want you to know that you and baby Owen are so very much in my thoughts and prayers. I am thinking of you every day and seding my positive energy your way.Stay strong,and may God continue to Bless your family, Much love and Hugs, Cathy Chiverton