Body Bling!

Owen is awesome. We are getting rid of things every day. Today all chest tubes were removed along with all the pacer wires. He looks so much more comfortable with all of that out of him. He had his Arterial line removed from his Right radial artery. He is now just down to his oxygen that they want to take off him as soon as possible. Maybe by the end of the day today. He then just has a Picc line that will be removed tomorrow and 1 IV that will be removed when he goes home. He is still working on eating and we are working on normal size meals. He only will drink about 1 oz and gets tired so we are still working it. It will get better with time. He receives the rest of his meal via a tube the goes down his nose to his stomach. We have gotten a lot more holding time today and we are so happy that now with the chest tubes out he is so much more comfortable and easier to console. He respiratory rate has slowed with the chest tubes out. It has been nice to see progress with him. It seems that he is a little better everyday. He is going to get another blood transfusion today. They like to have the blood levels a little higher in cardiac kids. We will see tomorrow they are going to try to switch all of his meds to the oral route.


We are doing good. We left a little early last night so we could make a run to Trader Joe's and get some food so we don't have to eat out as much and had to buy season 3 of entourage. I think we are losing sleep because we are addicted to this show. It has been a beautiful day down here yesterday and today. I have been laughing at people because they are all talking like they are having a heat stroke and we are in the middle of the Sahara. Some here think that it is Hell on earth with a scorching 85 degrees.

We are just crossing our fingers and hoping that we don't get any curve balls. This time next week we could be home. We have been talking about how home is going to be weird. I won't know what to do. We are going to have to adjust to having a newborn at home. Even though he is almost a month and a half old this will be the first time when will be taking care of him for 24 hrs a day. Today we have been in SF for 1 month. Time flies when you are having so much fun! Owen is strong and has gone through more in his short life so far than most will go through in their entire life. He has already touched so many people from the stories I have heard. It is amazing that this little 8 lb life has changed so much. I am seeing the world through new eyes.
-Chris